Going to get tested for Lupus today or tomorrow.

I had some crippling chest pains last week, I thought I was having a heart attack except my left arm didn't go numb. So I did what any self respecting man does and ignored it. My sis went into the hospital over the weekend for the same thing. It turns out it was possibly her lupus attacking her heart.

I started talking to my other sister who has it and the rosasia on my face? A possible sign of Lupus. The joint pain I went to the doctor last month about and is still bothering me? A possible sign of Lupus. My anxiety? A possible sign of Lupus. My chest pain? A possible sign of Lupus.

Actually these are all of the signs.

The internet is bitter-sweet with things like this. A Google search tells me there is no cure but you can live a healthy, happy life in spite of the side effects of the drugs. Also, 78% of people with Lupus live more than 20 years, for some reason I was looking for something better than that.

Oh yeah, I'm 26. The exact ages my sisters started noticing the symptoms. Just last week I was telling my father that I'm sorry if it seems like I've been complaining about being in pain so often, it was just that the last year has been really rough. I have felt like I am eighty years old.

Lupus is found in .00053% of Americans. 1 in 10 of those are male. Very few of those are white. Somehow I may have just beaten some incredible odds, if the tests come back positive, I'm playing the lottery.

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Comment by §kürrý on January 4, 2011 at 9:09am
Thanks Jason. They sort of did a test for fibromylagia, my doctor is not very good though and seems to be a little too new and inexperienced. I've been browsing for a new doctor but money is a little tight and I'm still paying for all these tests. /shakesfist/

I was having pain all over but now just in my knee. Some days really bad, other days not at all.

It was certainly a relief to have a negative result, although I was glad to know I would have had a nice support group.
Comment by Jason L Fish on January 1, 2011 at 9:09pm
GEEZE!! i read the lupus blog and was about to hope my brains out for you!! but the seccond i went to comment i read the negative reading! thats GREAT to hear man, im very sorry for your sisters and you might even take a glance at (had to look up the spelling) fibromyalgia, because although i dont know alot about your symptoms its tends to cause a lot of random and all over pains
Comment by Glen Rosenberg on October 2, 2010 at 9:56am
Skurry, I think that is good news. On the other hand when you feel awful and you dont even have a bad actor to blame it is not easy.
Comment by Grace Fitzpatrick on October 2, 2010 at 9:40am
I'm glad it's not Lupus. My husband had one lupus test after another until finally they decided it was fibro. A lot of these diseases like MS and fibro, it seems to be a process of ruling things out. I hope you get some relief soon. If the pain is coming from inflammation, taking Aleve should help some. I know you probably don't want to take this everyday, but it may help on the worst days. Aleve is naproxen which is an anti-inflammatory.
Comment by §kürrý on October 2, 2010 at 2:24am
ANA came back negative! :-) This has given me a better perspective on what my sisters are dealing with. Dr is sending me to a GI for some related issues... I am still not understanding where all the pain is coming from. I can't walk at the end of the day. My legs hurt all the time, my hands and feet are killing me, I just wish I knew what it was.
Comment by Sentient Biped on September 29, 2010 at 9:26am
Good luck to you. Test results for lupus are not the whole picture - it's the symptoms plus the tests. I hope it goes well.
Comment by Grace Fitzpatrick on September 28, 2010 at 12:33pm
i hope all the news is good. My thoughts are with you.
Comment by §kürrý on September 28, 2010 at 9:19am
Thank you for the kind words Glen and Grace. My doctor is having a plethora of tests done, some I'm not sure why but I guess that's why he went to med school. You can be sure that I will vent my relief or frustration when I get the results back. It should be just a few days.
Comment by Grace Fitzpatrick on September 27, 2010 at 11:55am
I have MS and my husband has fibromyalgia. Fibromyalgia has many of the same signs as Lupus. We thought he had Lupus for years until he got a definitive diagnosis for fibro instead. MS, Lupus, and fibromyalgia are all very similar and all difficult to diagnose. The good news is with all of them you will probably lead a normal lifespan. The bad news is, some of it will be miserable. ((hugs)) Since you already have family members with a diagnosis, you already know the prognosis.

Before you become resigned to lupus, also check out the possibility of fibro. Both my husband and my stepmom have it and they have the same symptoms you describe. It is an incredibly painful disease. I am often glad I have MS instead. I may be numb, but at least it hurts less.

Try to get plenty of rest and not overdue it. I find for myself, my husband and my stepmom, we all do better with large amounts of rest. I mean real rest laying down. I have found a netbook or a laptop is a real life saver during my down times.

I wish you the best. My thoughts are with you. I hope you get answers soon.
Comment by Glen Rosenberg on September 27, 2010 at 10:43am
I have a friend who was recently diagnosed with lupus. She changed rheumatologist and took the definitive diagnostic test for the second time and was told by her new doctor that she may not have it. Apparently the symptoms wax and wane and it is not unusual for patients to wait years before they are diagnosed. Also it appears that lupus is a panoply of autoimmune disorders and the severity and symptoms differ greatly. Some people have flare ups that are terrible, others flare ups are managable. Based on what I have read I suggest that you limit exposure to the sun and avoid eating white starches and sweets.
I hope you catch a break. Tough to deal with that sort of thing at any age-tougher when you are so young.

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