My name is Jim, but most online friemds call me Okie Tokie or OT. I have had Sarcoidosis for 24 years. Lungs, Lymph, Skin, Kidneys, Spleen and suspected Bwain.

I would like to finger-talk to other sufferers who do not believe in magic/prayer groups/Healing touch and other supernatural type cures.

Most of the other Sarcoid groups I have joined are full of Christian Fanatics who are there to save your soul before you die. I ask them is their Invisible friend is so omni-potent, why are they still sicker than I am.


Been extra-communicated from more that one group for presenting a Newtonian and Darwinian view of Universe.

Is there anybody out there?
Party On
OT

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Comment by Okie Tokie on June 11, 2010 at 4:41pm
I have lost most of my teeth from sarx related crap. Most of my pain now is in my jawbones,
Ghost of Molars Past?
I have been tapering off Prednisone and that causes muscle and bone pain.
Some of the other drugs I take cause nausea (Depression, Asthma, Parkinson's, Apnea)
MM helps with all these and the side effects are sweet.
BUTT, I have it much better than some of my sarcx friends.
The ones who use MM seem to get along better than those who don't.
Party ON..
Comment by Dave Rogers on June 11, 2010 at 4:12pm
Welcome to A/N Jim. Instead of condemning you for not being "saved" for your next non-existent fantasy life, we'll hope that medical advancements in Sarcoidosis come much quicker (than they are) to help you in your actual life. Are you in much pain? Hence the MJ?
Comment by Olga Spelts (Human Bean) on June 9, 2010 at 7:15pm
"Most of the other Sarcoid groups I have joined are full of Christian Fanatics who are there to save your soul before you die"

That is so wrong! I hate how Christians, much like pestilence, take over these things. A person cant get some support without those people budgering in and using health issues to push their religious agenda. I checked up sarcoid and atheism and from my search (my search abilities arent as sophisticated as others) I came up with this site. I'm sure youve seen it though. From what I've read it doesnt seem religious.

http://www.sarcoidlife.org/supportgroups/online.htm

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