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Cancer

If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

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Cancer

Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

Discussion Forum

Men at risk of Prostate Cancer could in future be identified by Gene Tests

Started by Dr. Terence Meaden. Last reply by Patricia on Tuesday. 3 Replies

Ex Nature Genetics... Genetic tests could identify men having up to 100 genes that together can raise their risk of prostate cancer sixfold. One per cent of men carry a combination of the genes that…Continue

Tags: Prostate Cancer, Genes

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Comment by Sentient Biped on October 1, 2013 at 11:34am

I did some reading about probiotics.   I don't think the answers are all in. 

The bacterial population of the colon is highly diverse.  More than 5,000 different species or strains.   Many of them can not survive the presence of oxygen, or drying out.  That leads to how they get there in the first place.  It is a gradual process, months and years, and the bacteria come from the people closest to us, for the most part.  But also from foods and maybe aerosolization in toilets.  Rare, and controversial is the idea of a fecal transplant from a known healthy, related donor.  That is still very experimental.

Taking antibiotics, having surgery, having chemotherapy - those would be expected to disrupt an ecosystem like clearcutting a forest.  Then it needs to be repopulated.  For some people, that's easy and fast and doesn't require any effort.  For others, it's a more difficult thing.

One question is, would adding back just one or a few species be beneficial, when there are thousands of species?  Some of those thousands, doubtless, self-repopulate from traces not killed off in the first place, or intimate exposures.   Others, maybe not.

The studies have been limited.  They don't seem to concentrate on the chemotherapy  patient.  They seem to have been helpful for irritable bowel syndrome.    Also CNN article.   From the studies, there is some benefit for some patients, but not all.

The other issue is, if the  probiotic is there to replenish the population of that particular species - what is the benefit of continuing to take it?  That would assume it does not take hold and proliferate in the colon.  Understood if there are antibiotics of chemotherapy ongoing, but after they  stop?  I don't know.

Bottom line is, I think if it helps, it's reasonable to take, and if it doesn't, it's reasonable to stop.  That's just my opinion, so take it for what it's worth.

I don't have the link, but the species in Align was considered the only really beneficial species, in some studies.

There is also the issue of "Prebiotic" - foods that replenish the colon bacterial ecosystem by specifically nourishing those bacterial.  The lists usually include onions and garlic (which I love), and a number of foods I don't eat.  Whole wheat and honey are on lists of prebiotic foods, also some of the usual"you know they are good for you foods" like legumes, broccoli and cauliflower. 

I think a food diary, either i writing or in the mind, can be helpful.  That way we learn what helps and what exacerbates symptoms.

Comment by booklover on September 30, 2013 at 4:17pm

I quit taking it for a couple of months, and I can't tell the difference.  I hate to not do what the Dr. says, but I also hate wasting money if it's not helping me.

Comment by Patricia on September 30, 2013 at 3:57pm

Align here is average $34 give or take, for a 28 day supply. The other one I took, is about the same price for 30 day supply, but it comes on sale quite often for about $30 or sometimes $32. It's in the dairy section of the grocery store.

Comment by booklover on September 30, 2013 at 3:39pm

Me too Patricia.  Align is so expensive, and I can't tell if it's doing anything.  The box next to it that claims to be the generic-version, or just as good as Align, clearly shows it does not have the same active culture.  Align has a patent on it, and my Dr. swears it is different from the others.  Like I said though, he may just be prejudiced!  Prejudice?  Predjudiced?  Oh well! lol

Comment by Patricia on September 30, 2013 at 1:47pm

I take the probiotics as well, & am trying the Align at the moment. My dr. is adamant that I take these expensive things, but I have no idea if they are doing anything. My innards issues never change so am very careful of my foods & portion sizes. The colitis is either in remission or out of remission from before probiotics or after.....so who knows?

Comment by booklover on September 30, 2013 at 7:33am

I have been on Align Probiotic for a couple of years, recommended by my gastroenterologist.  His friend that he worked with at Mayo Clinic developed it.  I think that Dr. now is back in Ireland where he is from, if I understood my Dr. right.  My Dr. swears it is better and different than all other probiotics, but he could just be promoting his friends product!!!   I cannot tell if it makes a difference for me.

Comment by Joan Denoo on September 30, 2013 at 12:45am
Yes, I have been taking a probiotic from the beginning of my process, and before starting chemo. The M.D. asks me each time I see her if I am taking it, so it appears to be important to her. I have no idea if it helps, or not. When I was feeling so wretched, everything was suspect, at least for me. I faithfully staid on the regimen, and I am sure I benefited by it all.
Comment by Sentient Biped on September 29, 2013 at 10:41pm

Joan,

Hang in there!  You have come such a long way!  The worst is behind you.

I've seen Dave's Killer bread at Safeway but haven't tried it.  I hope it's good!

Are you using a probiotic to help replenish your system?  Some people find them helpful.

Comment by Joan Denoo on September 29, 2013 at 6:45pm
I tried different fruits and vegetables this past week and handled them just fine. This coming week I will try Dave's Killer bread ... a bite at a time to see how my gastric system handles it.

My eyebrows and lashes completely disappeared and now a funny little fuzz is growing on one lower eye lid. My nose is still bald inside, and all the nasal stuff continues to flow onto my upper lip. YUK! I don't see any fuzz growth in there, even when I use a lit magnifying mirror. Oh Jeez! I just have to learn patience.

I talked to a lady on Friday who had celebrated the end of her chemo-cocktail treatment. She said she had to stop after five treatments because her heart couldn't stand the strain. I guess I was lucky being able to go through the sixth on Sept 4, although it made me terribly sick.

I talked to another lady who is terminal and she and her partner have the brightest smiles and countenances. Each day is a blessing to them, and they celebrate.

I talked to another who is the wife of a man who has been on the same schedule as I and he is not doing well. They, too, grasp each moment as a treasure.

There is something about cancer that puts life and living into perspective. My dear family continues to steadfastly offer more assistance than I need.
Comment by Joan Denoo on September 22, 2013 at 11:11pm

Daniel, you speak the truth. To willingly take on the poison, knowing it offers some probability of survival makes it all worth while. Lots of bother and inconvenience. The alternative provides excellent motivation. Is that white cap calcium by any chance? The others don't look familiar. 

I found out Friday that my tear drain down my cheeks and nasal drain onto my upper lip is because of not having eye lashes or nose hairs. The good part of that is I don't facial hair either. Some bad/some good.

Ah! Patricia, you have been through it and know of which we speak!

I fell so much better getting past the four-chemical cocktail; Keep us posted, Daniel on how you get along. We provide virtual emotional support, or at least we/I want to.

Mindy, I suspect this is going to be like having a baby, it hurts like blazes during labor and all is forgotten when it is over. 

Good night everyone, sweet dreams, may gratitude, joy and peace be with each one.  

 

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