If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

Members: 20
Latest Activity: Aug 25


Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

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Comment by booklover on October 13, 2013 at 6:45pm

I just read your blog Daniel.  I hope you know what an awesome man you are. Hugs to you~ Mindy

Comment by Patricia on October 13, 2013 at 6:43pm

AW shit!!!

Comment by booklover on October 13, 2013 at 6:32pm

I just saw on Facebook yesterday, that a friend from my son's childhood has cancer.  He is only 20.  I don't know what type it is, but he said he had an incision in his groin-area.  Then  later he says the tumor is too big to operate on, and that he will be starting 9 weeks of chemo.  6 hours a day.  Starting 3 days ago.  I sent a message to his mom.  She called me when my son was diagnosed with type 1 diabetes.  We have not seen each other in years, and neither have our sons, but our husbands run into each other occasionally, and so we hear about each other.  I have just been off-kilter since I read that. Not being able to take the tumor out doesn't sound good, not that I know anything about it.  I just feel so sick.  The thing is is that they are EXTREMELY religious.  They just keep talking about how it's all in 'god's' hands, and whatever 'his' plan is, it will work out.  Tons of people keep telling him on there that they know that 'god' will cure him because he is so faithful.  It flabbergasts me.  Why would 'god' have cancer be part of ANYONE's plan?  SO SICK. :(

Comment by Sentient Biped on October 4, 2013 at 10:33pm


Here is some info and a link from Mayo Clinic.  I find Mayo to be generally reliable and without biases that I can see.  Here is some of their info about fatigue and cancer treatment:

"Cancer treatment. Chemotherapy, radiation therapy, surgery, bone marrow transplantation and biological therapy may all cause fatigue. You may experience fatigue when chemotherapy or radiation therapy destroys healthy cells in addition to the targeted cancer cells. Fatigue may occur as your body tries to repair the damage to healthy cells and tissue. Some treatment side effects — such as anemia, nausea, vomiting, pain, insomnia and changes in mood — also may cause fatigue."  The reference has a lot of info, including coping strategies.

Here is a link to a question on breastcancer.orgMost women who get whole breast radiation over 6 weeks have very mild symptoms. Fatigue is the most common, but generally doesn't start until about week 3 and then persists for a few weeks after radiation.

And on about.comnausea, diarrhea, and hair loss usually catch a person's attention first ...  it is actually fatigue that affects people the most. Lack of energy and excessive tiredness seem to plague all cancer patients, but those going through radiation therapy do experience frequently and often chronically.  The article goes on to give coping strategies, that you might find helpful. 

From webmd:  " Early side effects, such as nausea or fatigue, are usually temporary. They develop during or right after treatment and last for several weeks after treatment ends, but then improve."

i think your daughter's advice is sage.

My oncologist seemed pretty clueless about the fatigue I experience, and wanted to stop my treatment as an experiment.  Instead, I have been working around it.  One reason I declined nausea medication is it can cause spaciness and fatigue, and I didn't want to make those worse.

I hope those links are helpful.  Their information looks reliable and in general seem to be in clear terms.

Comment by Joan Denoo on October 4, 2013 at 2:37pm

Daniel, as usual you have kind words of encouragement and resources to answer questions that don't seem to have answers. I talked to the radiologist and he said these changes are different for each person. I felt left out in Zombieland. My daughter reminds me what is, is, and we just have to live through it. That I can do. 

Comment by Sentient Biped on October 4, 2013 at 2:28pm
Joan, you have been on a long and difficult journey! And you are so near the end! Hang in there!

The answer in general is yes, thosevsymptoms are expected. The fatigue effects especially build up with time of treatment. Cells thst are injured by radiation, require nutrients and the bodys energy supplies to rebuild.

I will plan on supplying some info for you later. At the moment Im on ipad where ability to link is beyond my skills.

Everyone has a different situation. But I think your symptoms are not too surprising and should improve as you recover from the treatments.
Comment by Patricia on October 4, 2013 at 1:07pm

Can't comment Joan, I didn't have radiation.

Comment by Joan Denoo on October 4, 2013 at 11:52am

Patricia, I need your fine counsel again. I have only two full weeks left of radiation, and I am beginning to feel nauseous, pain, and just general lethargy. Is that to be expected? 

Comment by Joan Denoo on October 4, 2013 at 11:50am

Spud, welcome to this group. I know you will have some fine things to share with us. 

Comment by Patricia on October 1, 2013 at 2:23pm

I was told to take the probiotic because I'm very yeast prone, as well as having the irritable bowel syndrome & collagenous colitis. I just got over another yeast infection from all the sweating this summer, & I've been on the probiotic now for a year or more. I just can't see what it's doing for me if anything at all. I'll have to ask about this.


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