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Cancer

If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

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Latest Activity: Nov 16

Cancer

Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

Discussion Forum

what is cancer?

Started by Luara Oct 8. 0 Replies

Here's a good blog on the hallmarks of cancerContinue

Men at risk of Prostate Cancer could in future be identified by Gene Tests

Started by Dr. Terence Meaden. Last reply by Patricia Sep 16. 3 Replies

Ex Nature Genetics... Genetic tests could identify men having up to 100 genes that together can raise their risk of prostate cancer sixfold. One per cent of men carry a combination of the genes that…Continue

Tags: Prostate Cancer, Genes

Comment Wall

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Comment by Daniel W on September 17, 2013 at 10:17am

Joan,

I hate to think about you feeling ill.  Anxious for you to get better, which you will day by day.  Whatever ways there are to enjoy the moment, I wish for you.  If taste isn't working well, how is fragrance?  Lavender, Mint, Clove, Cinnamon all have some calming properties and might sooth without adverse gastric effects?  Guessing on that.  It's a learning process.

I have gone from lots of coffee daily to lots of tea.  Usually chai tea or spiced orange teas.  They seem to soothe, reduce nausea, and don't cause diarrhea - actually seem to reduce that symptom for me.  Also take my pills with apple sauce, which has a similar effect, while fruit juices nauseate and go right through me.

Last weekend i worked so hard on the 2 acres, I was completely exhausted.  Planted another tree, completed another raised bed, constructed a new roof for the chicken house.  Slept 12 hours afterwards, from afternoon to morning.  It was a very good exhaustion and took my mind off stuff.  But I regretted, a little, not doing some reading I like.

Sometimes after a day at work, I'm so exhausted and want to cry.  It's the unrelenting demand, and the corporate / workplace politics.  Entitled, privileged people scrambling for their supposed needs....  Then I take care of someone who really needs my efforts and expertise and empathy, and I can see they look and feel so much better, and I can cut through a little of the crap and make a difference and I feel so good about it. 

Can't imagine not working.  But sometimes so wish I could do so....  Before cancer I didn't think about quitting, now I do every day.  Also can't afford the treatments, scans, and obnoxious oncologist if I don't work. 

Just venting.  I'm fine.  Off today and planning to do some puttering as well as "homework".  Hope you are feeling a little better, day by day.

Comment by Joan Denoo on September 17, 2013 at 12:20am
"Men who drank six or more cups per day were 18 percent less likely to develop prostate cancer compared with non-drinkers, and were 60 percent less likely to develop metastatic/lethal prostate cancer.
"Worldwide, 70 percent of people diagnosed with diabetes and obesity have Non-alcoholic fatty liver disease (NAFLD), which is the major cause of fatty liver not caused by excessive alcohol consumption.
"Excessive consumption of fructose, which – unlike glucose – is processed in the liver and is linked to increased risk for NAFLD.
"(Both cane sugar and high-fructose corn syrup consist of one molecule each of glucose and fructose.)
"Almost one in three American adults have NAFLD, for which diet and exercise remain the only effective treatments. 
Comment by booklover on September 15, 2013 at 3:27pm

Hi Joan!  I'm glad you are nearing the end of your treatment.  Don't get me wrong, I have days where I feel really good!  Quite a few of them!  But I never know when a not-feel-good-day will hit.  So it's hard to look for a job, or plan things.  Luckily, the meds keep me from when I used to have that unrelenting nausea.  That was something unbearable.  I don't have that anymore with my meds, and I am very grateful for that.  So my condition is just a day by day thing which is all we can do anyway!  Take life one day at a time.

My kids are both working, enjoying going out with groups of friends, etc.  They will figure out what they want to do in life eventually.  I am not going to stress over it.  All I want is for them to be safe and happy.

I love your wonderful attitude, and thanks for sharing all that you do!  I really learn a lot from you.

Comment by Joan Denoo on September 15, 2013 at 2:45pm

Mindy, There are so many things over which we have no control. Learning to live with uncertainty and chaos takes real effort. Years ago I read "Chaos Theory" by James Gleick. 

"Chaos theory studies the behavior of dynamical systems that are highly sensitive to initial conditions, an effect which is popularly referred to as the butterfly effect. Small differences in initial conditions (such as those due to rounding errors in numerical computation) yield widely diverging outcomes for such dynamical systems, rendering long-term prediction impossible in general.[1]"

~ Wikipedia

I also read "The Essence of Chaos" by Edward
Lorenz

He explains the "butterfly effect" 


These ideas came through Ed Lindaman, president of Whitworth University, who helped me with my thesis, "Toward a theory of Family Violence."

I don't know if these ideas will help at all, and I offer them simply because they helped me live with situations over which I have no control. 

I do hope you have a great day, just overflowing with contentment, joy and peace. 

Comment by Joan Denoo on September 15, 2013 at 2:44pm

Mindy, I know your condition is chronic, with little or no permanent relief. Your situation is much harder than mine. I know there is an end in sight and I just have to tough through to the final goal line. I assume you have cut out all the obvious stuff, such as food allergies, things like that. Having an anxiety disorder doesn't help you any at all. 

Having children the ages of yours is not an easy period. I remember it all too well. My three children all turn 50, Cary's was Sept 8 and Craig and Laura on Feb. 21, 2014. They each had bumpy times along the way and have now settled into strong, decent, responsible, dependable, independent life styles. I never thought I would live to see that happen. 

They all know there are going to be rough times ahead with political and economic strife. They work to be self sufficient and reliant in ways that downturns will have fewer effects on them than those who do not realize what is happening and are not preparing. The fun thing is, they each are simplifying their lives, finding creative and satisfying ways to find deep pleasure and raise their kids with solid values of care and compassion and commitment to living lightly on the Earth. They each have commitments to their communities, 

Comment by Joan Denoo on September 15, 2013 at 2:06pm

Daniel, I am just now getting so I can look at food. This morning I fixed a normal breakfast and was able to eat most of it and some of it tasted good, the rest not so good. I continue to lose weight and that is a good thing. My normal desire is delicious gourmet food ... YUCK! So a simple slice of sourdough English muffin with a thin layer of natural, unsweetened jam, a dollop of vanilla yogurt topped with flax seeds is about all I can get down in the AM. A banana or apple or avaca is doable at lunch, and for dinner a cup of homemade chicken stock, or a scrambled egg, and a piece of fresh green is about my limit. My system still turns it into pond slime. I don't know how long it will take to get those four chemicals out of my system, and I can say I am feeling a wee bit stronger. The Herceptin and radiation have had no negative effect on me at all, it is just purging my body of all those chemicals and that will take a bit more time.  

My mental and emotional state remains active and positive. We laugh a lot, which helps keep me focused. I make playlists everyday on topics that interest me and they entertain me as I go horizontal. I can't read because my eyesight is blurred and my eyes and nose water constantly, coating my face with tears and phlegm, creating a stinging rash.  That condition is normal and should end when my body is purged. 

All this misery tells me the chemicals are working and I just need to let them do their thing. Nothing, so far, has ben unbearable, just unpleasant. Kind of like having a baby. 

Well, enough about me, how are you doing Daniel? Your gardening progress enriches my day, pleasing me to be included in your efforts.

I'm off to the garden to sit with the critters until it gets too hot, then horizontal with playlists. I hope your day is just splendid, full of joy and gratitude to be alive.  

Comment by Daniel W on September 15, 2013 at 1:20pm

Joan, is your system starting to head back to normal after your last chemo?  Taste buds starting to settle?  Any foods tolerable for you?

Comment by booklover on September 10, 2013 at 9:04am

That's neat Patricia!!!

Comment by booklover on September 9, 2013 at 4:41pm

Patricia, that's quite a list!  My most horrible thing that I just cannot deal with was the EXTREME nausea.  It was un-relenting.  I am now on a few meds that make it go away about 90%.  I will not complain about that!!!  You have a great attitude about doing things that make you happy!  I need to find some more things that make me happy.  I might volunteer somewhere just to get the heck out of the house.  That's cool you wear purple and even got a purple cell phone! :)

Comment by Joan Denoo on September 9, 2013 at 4:22pm
Awesome!
 

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