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Cancer

If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

Members: 21
Latest Activity: Oct 8

Cancer

Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

Discussion Forum

what is cancer?

Started by Luara Oct 8. 0 Replies

Here's a good blog on the hallmarks of cancerContinue

Men at risk of Prostate Cancer could in future be identified by Gene Tests

Started by Dr. Terence Meaden. Last reply by Patricia Sep 16. 3 Replies

Ex Nature Genetics... Genetic tests could identify men having up to 100 genes that together can raise their risk of prostate cancer sixfold. One per cent of men carry a combination of the genes that…Continue

Tags: Prostate Cancer, Genes

A Personal Cancer Blog

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Comment by booklover on November 8, 2013 at 10:27am

Daniel, I like what Patricia said.  The blurry vision sucks, but like you said, if it staves off the cancer, then it's worth it.  I'm glad you can find some peace in your orchard. 

Comment by Patricia on November 7, 2013 at 9:08pm

It counts big time that you're here today, & you have your spouse, your land/garden, home, & us. The pleasure has to be enjoyed in the now & the later isn't here yet.

Comment by Sentient Biped on November 7, 2013 at 8:00pm

I kind of thought this already, but it's interesting to watch.  Once the video reaches the ad at the end, nothing more useful is said.

 

I had my oncology appointment this afternoon. My vision is worsening rapidly. The nurse practitioner I saw suspects it's the medication - Gleevec. I don't know what to think about that. Everything has a price or cost, and if blurry vision is a side effect but the medication staves off rapid progression of cancer, it seems obvious to me I should continue.

Spud, in response to your question, I'm on a fairly new medication, Gleevec. It's not the horrendous ordeal of standard chemotherapy. Neither chemotherapy nor radiation therapy do anything to my cancer. The medication is new, developed in the past 15 years, probably only about 10 years of experience with its use. I take it daily. It's not thought to kill cancer cells, just stop them from growing. As of the last scan, there was no visible disease, but given the prognosis, it's believed there are microscopic deposits that don't show up, like dandelion seeds, waiting to grow and spread. There are only 2 medications, and probably both have the same effects.  Stop the medication, and the cancer is expected to grow quickly.

I feel very fortunate - I have a chance to continue in reasonable comfort, and be productive, that others 15 years ago would not have had. If not for this treatment, I might already be dead. The main side effects in my case are fatigue, episodic diarrhea, nausea, and apparently, this blurry vision. The fatigue is variable. I'm especially productive in the am. Afternoons are pretty iffy, especially if I work hard in the am.  Sometimes when it's really bad, I think maybe I should just give up.  But that is not often.  When I am in my little orchard, I feel peaceful and at one with the world.

Comment by Patricia on November 7, 2013 at 11:47am

I never tried to futurize during my treatments & took every day as is....did as told etc., & then it was done. In between treatments, I still did my normal routines, although slower, but they got done.

Melinda, that's a bit stressful to say the least!  

Comment by Idaho Spud on November 7, 2013 at 10:04am

Not saying anyone else on the site complains too much.

Comment by Idaho Spud on November 7, 2013 at 10:02am

Sentient, I'm not aware of the full story of your cancer treatments.  If you don't mind, I would especially like to know what's causing your tiredness.

I get the idea you're like my dad in that you don't complain much.

Comment by booklover on November 7, 2013 at 9:38am

Sorry you have to stay with Dr.'s you don't like in your health plan Daniel.  We have to switch everything in January because my husband's Union will have a new contract with his company, and there's no way the company will agree to our wonderful health plan anymore.  We have not paid one single dime for ANY prescription in 25 years.  THAT will not happen anymore. What I'm worried about the most is that I will no longer be able to go to UW Madison to see my gastroenterologist.  I am anxious about that.

Comment by Sentient Biped on November 7, 2013 at 8:50am
Joan thank you for the update. knowing that you are mending means a great deal.

I have oncology sppointment today. They are pretty dysfunctional here but I have to stay within my health plan. No big surprises expected.
Comment by Joan Denoo on November 7, 2013 at 1:25am

Thank you all so much for your encouragement and support. I had the Herceptin pump this afternoon and went out for Chinese food; I feel wonderful. 

I have 10 more Herceptin pumps, every three weeks, so that means I will be finished in 7.5 months if all goes well. 

Comment by Idaho Spud on November 6, 2013 at 5:00pm

Wonderful news indeed Joan.

 

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