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Cancer

If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

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Latest Activity: Apr 10

Cancer

Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

Discussion Forum

Transmissible Cancer

Started by Ruth Anthony-Gardner. Last reply by theburningmonk Apr 10. 1 Reply

Leukemia spreads in the ocean among soft-shell clams. This is the fourth example of natural cancer transmission in animals.…Continue

Tags: contagious cancer

A Personal Cancer Blog

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Comment by Joan Denoo on February 4, 2014 at 1:22am

Yes, that is what I mean. You cry and then you think and then you act. That is emotional strength. Sure, one might run around for second opinions, or try magic potions before doing the real work. It isn't hard to sort out fact from fiction, especially in cancer treatment.

A dear friend from high school days, now living in California, called me on a regular basis telling me to drink hydrogen peroxide, and it would cure my breast cancer. I checked research reports, sorting out the nonsense from the real work, and it was easy to know what I had to do.

This false hope that so many are more than happy to shove down ones throat do more harm than good and should be told that.   

Comment by Joan Denoo on February 3, 2014 at 11:42pm

Oh Patricia! What an ordeal. I can't help but think about the experiences of women of my grandmothers' and mother's era and what they had to go through. Those of us who have easy access to facilities and modern technology are fortunate today. For rural men and women the drives to and from treatments are gruelling. I talked to many people who had 6 and 8 hour drives from home to the CCNW facility. Some of them had meager means and had to camp out in the best arrangements they could make. There is now a place where people can stay for these frequent treatment. It just opened up. Kind of like McDonald House. 

I'm sorry you had that long wait for test results. Nine weeks are a long time to wait. Surgery, then chemo ... oh my goodness, you must have emotional strength of a lioness. "Cancer waits for nobody!" You are my inspiration.

Comment by Joan Denoo on February 3, 2014 at 10:16pm

Living with an OCD is like living with someone with pessimism prisms, seeing the world through worst case scenario glasses. Quite the opposite of living with someone with optimism prisms, seeing the world through "what do I do now?" glasses. 

I do hope your sister has emotional strength to overcome pessimism! It appears to me to be such a useless frame for living. Further, it seems pessimism is easier to catch than optimism. 

Maybe exposing your sister to some positive images will help her maintain equilibrium.  It isn't enough to think positive thoughts, the negative thoughts can be replaced with healthy, positive, nurturing, life-affirming thoughts. Keeping track of the good things in one's life may help.  Try not to catch the pessimism virus.

We are here to back you up. Just know you are not alone in this event. 

Just a wee bit of cheer:

Winter is a time of quiet contemplation, of many things unknown, of darkness, and mysteries. It is that time of the year of dormancy; the time of an event that is undiagnosed.

Because time does not cure all ills, this is a time of thinking, of getting information, accumulating knowledge in preparation for the unknown and all it entails. This period is one in which one seeks information, explores options, weighs the pros and cons of each option.

Once all the information from professionals and your own inquiry commences, decisions need to be made and planning for action takes place. One step at a time. One bump in the road at a time until all that can be done is done.

I love Daniel's statement, "What is, is."

That period of unknowns is the beginning of a process of healing.     

Comment by Daniel W on February 3, 2014 at 9:07pm

I have a feeling a cancer diagnosis is especially hard on someone with OCD.  That waiting is almost a rite of passage for transition from being just a regular person, to being a person with cancer.  It's hard.  Around here, the oncologist won't take a person who doesn't have an actual biopsy result. Their intake is usually a week or two.  First the biopsy, then that is sent to pathologist, and they have to process the sample and interpret it.  So from the first "This might be a cancer" to seeing an oncologist, might be several weeks.  That may  not make a difference as far as illness, or survivability - usually not, but maybe sometimes - but it's brutal psychologically. 

OI think for some, harder on the family than the person with cancer.

Comment by Daniel W on February 3, 2014 at 2:20pm
Mindy please keep us updated about the melanoma concern. I hope it's confined and that was all.
Comment by Joan Denoo on January 26, 2014 at 3:36pm

Daniel, thanks for the options and your experiences with them. I will give it a try. I will start with wordpress and see what happens. I very much like your cancer spot on A/N; it is a valuable source reading others' experiences and sharing my own. Feedback helps greatly. 

Comment by Daniel W on January 26, 2014 at 2:31pm

Joan,

I've kept my garden diary on Blogger for maybe 6 years.  I find it easy to use.  It's free.  I requires a gmail account, which is also free.  I think you get to that via www.blogger.com.  I've liked using blogger but google is trying to loop everyone who uses google into their universe, and if I had to again, I would use wordpress.

wordpress is also free.  www.wordpress.com  I use that for my cancer blog, which I keep separately.  Because of my employer, I keep my name off it.  I expectwill change after I retire.  If I life that long. Wordpress options range from the bare bones, no charge -which I use, to other options that do have fees. 

I'm self taught on both.  I don't know if I can explain how they are used, I just do stuff until I figure it out.  It's kind of explains itself.  I think I had a few false starts but just learned as I went along.

Both have options for photo upload, customization, followers.

Once you have a blog, it's like you have a self-published serial novel, or documentary, or magazine, or open diary, or conversation, or whatever you want it to be.  The purpose for my garden blog was entirely to keep a diary for my own reference from one year to the next.  But I know there are many readers, because I keep tabs.  More than 174,000 touches so far.

I keep the cancer blog to work out my feelings, and as a diary.   I don't make many entries, just when I want to think about things and get my mind on track. 

Comment by Joan Denoo on January 26, 2014 at 2:09pm

The autobiographies offer wonderful opportunities to communicate with future generations that we won't even know.

Terry, I like the idea of files by topics. A great way to organize and collect for future editing.  

Daniel, I had not thought of using a blog that could be published. I like that idea. Do you have a system that you recommend? I have been thinking of doing a blog instead of posting my concerns on Economics, Politics and Religion on A/N. I want to focus on playful things here. 

As to the finger and toenails:

Terry, yes, my first sign of ageing was being diagnosed with diabetes which I control with diet and exercise; then had a pacemaker installed in my heart, and I get serviced just as I have my car serviced on a schedule; next came the cancer with all the new adventures that provides. I read all the literature I can find so that I have good and bad information to sort through and about which I make decisions with the counsel of top-notch medical professionals. I read all the voodoo stuff, and that provides some entertainment. When I am wrapped in a final sheet and lowered into the worm pool, I expect to have all my fingers and toes intact. 

Daniel, thanks for the information about neuropathy. Yes, the doctors, especially the chemo dr. keeps close check on me and I use Glutamine, probiotics and an assortment of pills that puts stuff in me beyond my remembering. I get a blood draw every three weeks and changes as the drs advise. 

I agree, Daniel, and am grateful for the skilled, bright, and good teaching of my medical team. I feel well informed so I can make responsible choices. And I agree that the pharmaceuticals, stockholders and managers who operate out of greed, without proper care of health, has to change. 

The good news out of all of this, I have plenty of things to keep my mind and body involved and active in living. I have so much for which to be grateful. Especially you dear friends who tolerate my verbose rants. 

Comment by Idaho Spud on January 26, 2014 at 2:00pm

I agree Daniel.  The greed and lack of compassion is hard to understand.

Comment by Daniel W on January 26, 2014 at 1:10pm

This makes me feel very grateful, that I live in a place and time to have good cancer treatment, and very angry at the greed and inhumane arrogance of pharmaceutical company stockholders and managers.

Cancer treatment is only for westerners who can afford it.

Whatever happened to humanity?

It's not just the CEO - the board of directors who selected him and continue him on top, and the stockholders who support him, are all equally culpable.

 

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