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Cancer

If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

Members: 21
Latest Activity: Feb 15

Cancer

Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

A Personal Cancer Blog

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Comment by Joan Denoo on July 4, 2014 at 8:30am

Trixie, I know the feeling. Overwhelmed just is not a big enough word for what one experiences after the diagnosis and before the treatments begin.

I had a huge meltdown after my diagnosis and before treatments started. Cancer Care Northwest has an exceptionally insightful therapist for us and in one hour, I had sorted out my fears, hopes, and anger and could carry on with a sense of purpose. This cancer thing is a war going inside your body. Your cells don't care if you are confused or afraid, the cancer cells just grow at their pleasure and the chemo and radiation fight them with all the energy of fighting a colossal battle. Feelings turn into fatigue. I slept away a big chunk of 2013.

Your cancer is far more complex than mine, so I don't know exactly what you experience. My children are grown and they were a great support for me. 

I suspect your husband is overwhelmed as well. He probably feels helpless, and too often, men turn helpless feelings into anger. 

I hope you have a good mental health professional helping you sort all this out. Doctors and nurses can give you data to support their options and help you make decision. However, they do not have the training nor experience to help you with your emotions. 

Just make sure that any therapist is not a believer in superhuman powers. That notion can take you into dead ends that just do not turn out well. 

I have a disabled son, 50 years old and dependent on me, who was one of my biggest worries. He took my diagnosis very badly. Tess, my therapist, even helped find ways to turn that around and he is now one of my strongest team members.

If you can somehow include your husband and son into part of your recovery team, they may not feel so helpless and the myriad of other feelings they have. 

We, here at Cancer, are one your team. We will help in any way virtual friends can. Don't hold back; this is the place to rant. We have strong shoulders and big hearts and care very much that you have the best mental health possible as you face your cancer devils.  

Comment by Dr. Terence Meaden on July 4, 2014 at 8:12am

Michael, excision is right---and the sooner the better. I have had areas of basal cell cancer (aka bcc 

or rodent ulcers) appearing on my face off and on for some 20 years. The last one was on my nose (see picture, August 2012). If left alone, it can spread and spread, and destroy the whole nose and then the nearest parts of the face. One London hospital has kept the skull of a sufferer from the 19th century who lost a big part of his face this way. 

Comment by Joan Denoo on July 4, 2014 at 7:36am

Trixie, very good news that no other cells were found. By all means, kick cancer's butt! Go after it with the big effort! Your family team members will do wonders in helping you get through it. Do keep us up to date as your energy allows. 

Comment by Michael Penn on July 4, 2014 at 3:17am

About 10 years ago I had a growth suddenly appear behind my left ear about the size of a walnut. Deciding to treat myself, I waited months before going to the doctor, going there because my treatments did not work. The doctor had disbelief in the growth appearing "suddenly" but I pointed out that you would know personally because you bath and wash your hair every day.

Since this was a big problem cosmeticly, the growth was excized and sent to the lab. It came back as Basil Cell cancer and the doctor explained that it does not spread. The question was whether he got it all or not. He then wanted me to go get burned with lasers, etc. by other doctors. I refused, saying we could just "wait and see." My family ws so scared that "I had cancer." I explained that it was minor and they had cut it off.

Today I am informed that excission is no longer used for this type of cancer. I wonder why? This would leave them treating it similar to how I treated myself before I went to the doctor. As you can see, I don't really trust doctors, but I believe excission is the best cure in these type cases.

Comment by Dr. Terence Meaden on July 4, 2014 at 2:45am

Trixie, I am so glad to hear your good news.

Comment by Daniel W on July 3, 2014 at 9:32pm
Trixie, just checking - how are you doing?
Comment by Daniel W on July 3, 2014 at 9:31pm
Julie-Anne, welcome to this group as well as to Nexus!
Comment by Daniel W on June 28, 2014 at 7:25pm

Trixie, it's hard.  I hope the doctors will start having some better news soon.  I truly feel for you.  

Strength comes from adversity.  Even if you didn't think you were strong before, as time passes, you will find strength you didn't know you had.  Hang in there Trixie!

James, I don't have anemia, but there is profound fatigue.  I am learning to live with it.  Dealing much better now than a year ago.

Comment by James M. Martin on June 28, 2014 at 5:56pm

Mine, Sentient, was haemolytic anemia. They thought I needed blood product so I had about six units over a period of about 10 days. Then, the oncologist checked the chart again and said the blood product was not doing the trick and he knew how to help: steroids. That category of drug works like speed on me. I was staying up till 3 a.m. screwing around on the computer, writing this or that. I could easily get addicted to steroids, but he warned me to start cutting back to half a scored pill, then none. It did the trick, though. I would not wish haemolytic anemia on anyone. You cannot walk one city block and not feel like you are ready for bed. Your whole body is weak.

Comment by Daniel W on June 28, 2014 at 5:03pm

James, I'm am rooting for you to make it to 91 years old.

My dad had anemia with rituxin.  When they stopped the med, he rebounded and felt a lot better.  It worked very well for quite a while before that.

Maybe you should search on line for that drug you cant afford, from Canada.  It's shocking what a difference there can be.

 

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