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Cancer

If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

Members: 15
Latest Activity: yesterday

Cancer

Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

Discussion Forum

Participant Observer, loose bowel syndrome, unexpected and unprepared.

Started by Joan Denoo. Last reply by Patricia on Tuesday. 25 Replies

I thought I had given my last participant observer report, but just so others who may go through the same protocol as I did, here is another report on the loose bowel syndrome. The lesson here is,…Continue

Participant observer, toe and finger nails update

Started by Joan Denoo. Last reply by Joan Denoo Apr 2. 4 Replies

Finally got all through the red-tape of health insurance referrals and saw a podiatrist this morning. A man in his late 60s, I would guess. Extremely thorough about checking my health history, and…Continue

CD47

Started by Ruth Anthony-Gardner Mar 31. 0 Replies

CD47The most promising cancer treatment to date will begin human trials in mid-2014.CD47 is a kind of protein that is found on the…Continue

Tags: antibody based cancer therapy, CD47

Partipant observer update: cancer treatment and toe and finger nails

Started by Joan Denoo. Last reply by Joan Denoo Mar 18. 4 Replies

My present pain is these damnable toe and finger nails, wanting to curl into my skin. I see the doctor today about my big toe. It is now infected and looks a little like this picture. The tips of my…Continue

Comment Wall

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Comment by Sentient Biped on February 3, 2014 at 9:07pm

I have a feeling a cancer diagnosis is especially hard on someone with OCD.  That waiting is almost a rite of passage for transition from being just a regular person, to being a person with cancer.  It's hard.  Around here, the oncologist won't take a person who doesn't have an actual biopsy result. Their intake is usually a week or two.  First the biopsy, then that is sent to pathologist, and they have to process the sample and interpret it.  So from the first "This might be a cancer" to seeing an oncologist, might be several weeks.  That may  not make a difference as far as illness, or survivability - usually not, but maybe sometimes - but it's brutal psychologically. 

OI think for some, harder on the family than the person with cancer.

Comment by booklover on February 3, 2014 at 4:48pm
I will! My sister said he was home and they won't know the results for at least a week. My brother-in-law is very OCD in imagining the worst case scenarios for his and his loved ones health. I am too, but mine is worry for my kids. Enough to be on meds for it. :(
Comment by Sentient Biped on February 3, 2014 at 2:20pm
Mindy please keep us updated about the melanoma concern. I hope it's confined and that was all.
Comment by Patricia on February 3, 2014 at 1:54pm

Never did trust those booths......even before the news about them began to be heard. Hope they caught it early!

Comment by booklover on February 3, 2014 at 1:46pm
My Mon just called and told me that my Brother-in-Law, 52, has a melanoma on his back. They are removing it right now. Hopefully it hasn't spread. He is very vigilant about having his whole body checked, because he used to be stupid and regularly use tanning-booths. He advocates against them now. I will post when I find out more.
Comment by Joan Denoo on January 26, 2014 at 3:36pm

Daniel, thanks for the options and your experiences with them. I will give it a try. I will start with wordpress and see what happens. I very much like your cancer spot on A/N; it is a valuable source reading others' experiences and sharing my own. Feedback helps greatly. 

Comment by Sentient Biped on January 26, 2014 at 2:31pm

Joan,

I've kept my garden diary on Blogger for maybe 6 years.  I find it easy to use.  It's free.  I requires a gmail account, which is also free.  I think you get to that via www.blogger.com.  I've liked using blogger but google is trying to loop everyone who uses google into their universe, and if I had to again, I would use wordpress.

wordpress is also free.  www.wordpress.com  I use that for my cancer blog, which I keep separately.  Because of my employer, I keep my name off it.  I expectwill change after I retire.  If I life that long. Wordpress options range from the bare bones, no charge -which I use, to other options that do have fees. 

I'm self taught on both.  I don't know if I can explain how they are used, I just do stuff until I figure it out.  It's kind of explains itself.  I think I had a few false starts but just learned as I went along.

Both have options for photo upload, customization, followers.

Once you have a blog, it's like you have a self-published serial novel, or documentary, or magazine, or open diary, or conversation, or whatever you want it to be.  The purpose for my garden blog was entirely to keep a diary for my own reference from one year to the next.  But I know there are many readers, because I keep tabs.  More than 174,000 touches so far.

I keep the cancer blog to work out my feelings, and as a diary.   I don't make many entries, just when I want to think about things and get my mind on track. 

Comment by Patricia on January 26, 2014 at 2:16pm

Daniel, after my husband's stroke, which affected his peripheral vision, caused him to lose his driver's license, he began walking everyday to & from town. He'd stop into a restaurant for coffee before coming back home.

He'd go to the same restaurant & finally began seeing the same people there & of course the wait staff gets to know the customers as well.

Over the years he's made ''coffee pals'' with a half dozen or so fellows who are retired. I don't know the guys at all other than the occasional voice on the phone. They don't socialize outside of the restaurant, but still feel they have a friendship & call each other if someone isn't going to be there.

This is how he knows the fellow who was just diagnosed, & I'm sure they all feel they can talk to each other about the things they need to.  

Comment by Joan Denoo on January 26, 2014 at 2:09pm

The autobiographies offer wonderful opportunities to communicate with future generations that we won't even know.

Terry, I like the idea of files by topics. A great way to organize and collect for future editing.  

Daniel, I had not thought of using a blog that could be published. I like that idea. Do you have a system that you recommend? I have been thinking of doing a blog instead of posting my concerns on Economics, Politics and Religion on A/N. I want to focus on playful things here. 

As to the finger and toenails:

Terry, yes, my first sign of ageing was being diagnosed with diabetes which I control with diet and exercise; then had a pacemaker installed in my heart, and I get serviced just as I have my car serviced on a schedule; next came the cancer with all the new adventures that provides. I read all the literature I can find so that I have good and bad information to sort through and about which I make decisions with the counsel of top-notch medical professionals. I read all the voodoo stuff, and that provides some entertainment. When I am wrapped in a final sheet and lowered into the worm pool, I expect to have all my fingers and toes intact. 

Daniel, thanks for the information about neuropathy. Yes, the doctors, especially the chemo dr. keeps close check on me and I use Glutamine, probiotics and an assortment of pills that puts stuff in me beyond my remembering. I get a blood draw every three weeks and changes as the drs advise. 

I agree, Daniel, and am grateful for the skilled, bright, and good teaching of my medical team. I feel well informed so I can make responsible choices. And I agree that the pharmaceuticals, stockholders and managers who operate out of greed, without proper care of health, has to change. 

The good news out of all of this, I have plenty of things to keep my mind and body involved and active in living. I have so much for which to be grateful. Especially you dear friends who tolerate my verbose rants. 

Comment by Idaho Spud on January 26, 2014 at 2:00pm

I agree Daniel.  The greed and lack of compassion is hard to understand.

 

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