I thought I had given my last participant observer report, but just so others who may go through the same protocol as I did, here is another report on the loose bowel syndrome. The lesson here is, always be prepared, and keep a supply of Depends at hand. Trust me, you will be glad you are forewarned.
Even as I have gained strength and am recovering quite nicely, I still have that out of control gastro problem and had to go in and change all my clothes, including my socks and shoes. It came as a total surprise while I was in the garden. I am now of that classification known as the Depends Generation. I feel fine. Just can't go very far with assurance I won't embarrass myself and always wear the diaper/Depends when I go out in public. Oh yes, settling into that regression stage of development very nicely.
I like the frequent naps part.
Well when a person has up to 20 or so bowel movements a day/night, it can get depressing, & very exhausting.
It really burns me up though when I don't lose any damn weight when in flare! I figure if I must keep going through this nonsense, the least it could do is give me a bonus!!....hahahaha.
I thought about weight loss as a benefit of cancer too. It is strange having people tell me I look so healthy with my weight loss, and ask me how I did it.....
My goodness, getting such nice comments when you went through cancer to achieve it! Looks don't tell the whole story, do they!!!?
Your photos at the tulip farm you looked excellent. Were you able to enjoy the outing without getting fatigued?
You look great in your photos Daniel, amazing what doesn't show, huh?
The only weight I lost was the 10 lbs. of breast tissue with the mastectomy.
Oh Patricia, that is dreadful! I am so, so sorry. With all this and you continue to maintain your good humor and fine essence. You amaze me! Do you have anemia, and other ailments, of which I am not aware, that goes with such gastric irritation?
What is that brings you the most pleasure, that lifts your spirits, that time passes like lightning and your mind stays occupied?
This hasn't affected my other ''health'', am not anemic, etc. Colitis is colitis, & changing eating/drinking whatever makes not a speck of difference. I'm either in flare or I'm not....simple as that.
During flare, I have to take high dosages of Asacol, & the Lomotil to allow me a couple of hours away from a toilet. When not in flare, life is nearly normal.
I have books in the bathroom, I have my music, & I work at smartass comments when I get fed up with it all.
If anyone dares to say I'm full of sh*t for any reason, I'll just say, "I beg to differ, & I can prove it!!!"
I have arthritis, fibromyalgia, reflux disease, irritable bowel syndrome, collagenous colitis, allergies/asthma, severe sleep deprivation, & of course had the cancer nonsense, with the treatments giving me severely dry skin, which has now developed into eczema.
I have asked for years now for a body transplant, but the dr. says no.
As always Joan, you have my sympathetic affection. Terry
Thank you , Terry, for your care and compassion. Having a place to share experience, especially with the protocols of cancer treatments, helps to take it on. Knowing what to expect, and talking with others about their experiences enlightens me, especially as we have so many different experiences.
As the baby boomers would say, what a bummer. I know a little about how you feel, having had to sit my groceries on the floor and anxiously run to the restroom, only to discover that in their renovation, they moved it, and the sign wasn't accurate, then looking for the nearest clerk and having them give me inaccurate info too, and finally finding the restroom while walking like a runner duck.
For me, frequent small meals helps. Stuffing myself is certain to send me to the bathroom. Concentrated sugars and concentrated starches, like crackers, are an issue. Whole grain is less of a problem. I've been taking egg burritos in wheat tortillas to work for snacks, instead of the crackers I used to eat. That seems to help, or it's just random variation. Fatty foods are also a stimulus. I guess it forces me to eat healthy.
Sorry you have to put up with this indignity. I hope your system continues to heal, day by day.
That is what I felt like, too. There is a certain waddle that happens when faced with such a situation!. Loved your running ducks video! Perfect representation. Let me think, a new syndrome, cancer duck waddle.
Anyone around here able to write a song with music and lyrics that we can sing as we rush frantically around the box store looking for a place of rest-room.